About this website.
Hi Welcome at my website about my life with Hypokalemic Periodic
You can reach this website using one of the three url’s here below.
The URL k-u-t-z-o-o-i.nl (kutzooi) is a Dutch swear word and stands for something like “bloody mess”. Every time I have a Hypokalemic Periodic Paralysis attack and things goes wrong because I can’t move. I can’t get out of bed, can’t walk, can’t sit, can’t move my head or when I can’t get the most simple things done I swear. The word that I use most of the time is “kutzooi” that evaluated during the years in “kutzooi.nl”
During an attack last week (26-09-2017) I decided to register this swear word as a domain name and make a website about living with Hypokalemic Periodic Paralysis (HYPOPP/HYPOKPP).
I’m in no way a doctor or something close to that, I just tie up loose ends so I understand what is going on in my body. A lot of reading and watching YouTube video’ s about hypopp. During this process I write on this blog, the URL’ s I find and are worth reading I save on the links page on this website.
The text about the intro movie published on YouTube
Hi drone regulator, I have made this video to show that not every drone pilot is an thrill seeker. This video is about freedom. Freedom to take off when ever I want to. Freedom to move around our property. Because of a muscle disease Moving around is sometimes very hard to do. Thanks to my drone I can see the places in our neighbourhood were my kids riding there horse and go walking our dog. Flying my drone is giving me the freedom a kid gets from his bike