You know why I am so afraid of getting misdiagnosed?
Because of what is already happened to me and the shit that happened to other family members. The total nonsense that has been told by doctors to me and relatives made me become suspicious.
I could write I complete website or book about this but I don’t.
The second thing that made the hair on the back of my neck stand up was an article in the newspaper. Did you know, in the Netherlands all people who get diagnosed with Parkinsons Disease. And leave there body to science 22% is misdiagnosed and died not knowing that they didn’t suffered from Parkinsons Disease but it was something else.
In 2011 there were 39.936 Parkinsons patients (incl. parkinsonism) in the Netherlands, 22% were misdiagnosed.
So that’s about 8786 people only in the Netherlands with the wrong diagnosis!!
That means those people have been treated with the wrong medication and the wrong therapy!
If I went to any doctor during a Hypokalemic Periodic Paralysis attack, any doctor’s first thought should most likely has been Parkinsons Disease.
With the treatment for a Parkinsons patient the attack could be last forever and then it was clear to any doctor that the diagnosis Parkinson was the right one….
I am happy that I did found out my self that potassium is the solution for me and it shortens the attack from at least 3 days to only 5 or 6 hours.
The last major attack I have had toke 3 months last winter. If I knew then what I know now it should have last max 1 day.
Because Hypokalemic Periodic Paralysis is such a rare disease doctors are just saying “oh that’s so rare that’s not the case”.
But it is proven in the Netherlands 22% of all Parkinons patients
don’t have Parkinsons but something else.
Is Hypokalemic Periodic Paralysis really rare?
Link to the article in the newspaper:
https://www.telegraaf.nl/nieuws/136970/te-vaak-missers – Dutch