A typical HYPOPP day

A typical HYPOPP day,

Last week,my youngest daughter (13) fell of her horse, the horse came back alone. We jumped as quick as possible in our car to find her. Luckily she was not far away and able to walk toward us. Her legs are black and blue and bruised and so is her ear. We went to the nearby hospital for a quick examination, she has pain everywhere but she will be OK soon, as a matter of fact next day she was riding her horse again.

A happening like this gives a huge amount of stress for everyone, here I will describe how this is for someone with Hypopp.

At the moment the horse is comes back alone I was able to step into my car and start searching. Luckily my other daughter drives with me because at the moment we see her walking she is about 200m away from us. The road is full of mud and we can’t get to her with the car so my daughter jumps out of the car and runs to her sister. I have to wait in the car because I can’t walk that far to her and back. Changes are that I can’t come back or very slowly and need help too, and we need to hurry up.

We decided to drive to the nearby hospital, I can’t do that because I can’t sit in a waiting room for several hours. I can sit on a typical waiting room chair for 15 to 20 minutes max. before an attack hits me. So my wife and daughter took our youngest to the hospital, it took about 3 hours before they went home again. At the mean time I know there is an attack on it’s way caused by the stress so I take some extra potassium already.

At night I always set an alarm at 03:00 to eat something and take 20 mmol potassium, at 06:00 we have to go out of bed because of the school.
When I wake up I noticed that I move slower as usual so I have to take potassium (the first 20 mmol). After that I make some thee for everyone and feel that I was to late taking the potassium I move even more slow. I sit at the dining table and eat my breakfast but I start losing control of my hands, arms and head too and 15 minutes after I got out of my bed it’s over I can’t move anymore. My wife helps my back in bed and gives me the second time potassium (a total of 40 mmol). I have to wait until it’s getting better but nothing happens yet, after 20 minutes my wife brings me the third glass potassium (a total of 60 mmol this morning). She has to help me sit upright and hold me tight while I drink my potassium. About 45 minutes to an hour later the potassium kicks in and I can get out of bed by myself (08:30).

We have some animals who needs Lynna clean stable and something to eat and although am not yet fully recovered yet I decide take another 20 mmol potassium (a total of 80 mmol) and go outside to clean one or two stables together with my wife. But it was to soon so attack number two kicks in. With the help of my wife I manage to get to the back door and my wife helps me to put of my coat and shoes and helps me get in bed for the second time this morning. This time I manage to recover with twice a glass of potassium 20 minutes after each other. The total amount potassium I used to get back on my feet’s again is 120 mmol (6 sachets Verla kalium citrate).

Later that day at noon (14:00) I am able to wash the dishes, cook the evening meal and walk around the garden. Although I feel much better and can move again I do feel I’ve had an attack that day. It’ s good to know the triggers but it can’t always prevent you from getting hit by an attack.

Luckily my daughter is 100% OK again and so is her horse,

Jaap Rumping