I hope I can write this the way I meant to.
About 5 months ago my doctor called me and told me the DNA test results were negative. But they only had test two of the 5 known genes because the other genes are very rare. Tell me are they stupid or not….
So she gave me the advise to see a neurologist, so my wife made an appointment for me and in about 5 months March the 13th 2018 it was my turn.
Today was the day to see the neurologist, they ensured me that I don’t have to wait so long because I can’t sit there for a hour or more without getting a HYPOPP attack. The neurologist did all kinds of tests and listened to my story for +1,5 hours and guess what..
Here it comes: The neurologist told me my muscles are OK that’s good.
My both feet are paralyzed because of two broken nerves caused during a surgery back in 1994, that was not new to me, I knew that for only 22+ years now…
He couldn’t diagnose me because it is to difficult for him to diagnose HYPOPP. I have to go to a hospital 1,5 hours driving from here and stay there for 1 or 2 weeks.
BUT he talked with me about HYPOPP medicine and didn’t talk a moment about other possible diseases. AND while it toke so damn long I in the meanwhile was suffering from an attack, getting paralyzed in front of the neurologist and than he started reading to me all he found on Google about HYPOPP isn’t that pathetic?
My wife toke a wheelchair and drove me to the car, on my way home lying in our Chrysler Voyager I was already taking my potassium. Once I got home I went straight into my bed taking more potassium and ibuprofen to raise my potassium level. Two hours later and I am walking again and doing the dishes.
It’s like you are telling a doctor that grass is green and the doctor says I can’t confirm that. You are asking the doctor is grass an other color?
And the doctor says no it’s not ……. pathetic!